Want to make a difference? Prostate cancer online sexuality survey for survivors and partners. Dr. Jo-an Baldwin Peters (PhD)


the dog that trots about will find a bone

Dr. Jo-an Baldwin Peters (PhD) is conducting a survey on sexuality in regards to the prostate cancer survivor and the partner of a survivor. Judging by the search queries that my site gets, questions about sexuality after prostate cancer treatment, particularly prostatectomy, is an area of intense concern. There is very little written about it and I would think Dr. Peters’ work and the assimilation of the responses to the online survey will be ground breaking and helpful in the decision process. Below are some examples of the answers to the issue of ” penile size.” What you read in between the lines is that many patients are “surprised” to learn of the sexuality issues after treatment. This means that either the doctor or the patient did not do their job. I think patients over-value the ease of brachytherapy  and forget the potential for the side effects common of radiation, particularly its effect on sexual function. In a similar fashion, more and more patients are choosing the robotic prostatectomy and are enamoured with the “robot” and the faster “physical recovery” but fail to investigate the innate consequences of removing the prostate its attendant effect to the nerves responsible for erections. Dr. Peters’ survey will teach us all a lot but it will also serve as indispensible tool in the decision-making process. As a radiotherapist friend of  mine said to me one time about all the treatments, ” John , there ain’t no free ride.” It’s better to know that up front than to figure it out after ” The Decision.” The results of this survey and its availability to patients is going to help immensely.

Can penile length be preserved after radical prostatectomy?-Very nice discussion

Dr. Jo-an Baldwin Peters’ survey

Example responses

69 10/23/2009 20:04

After the first year (post-operative) I started to get erections and enhanced them using Viagra. The differences between sex prior to prostatectomy and post were a huge shock ! The surgery had reduced the size of my penis – erections were not si strong – orgasm was “strange” and sometiomes painful ( I could feel nerve pain ) and the lack of the ejaculatory sensation was disappointing. Most dramatic is my loss of libido – I think largely because I remain incontinent the whole issue of sex – desire and comfort – is diminished. We had a great sexual relationship – vigorous, creative, frequent and important to both – and I know that I have subliminated my sex drive due to three main issues: a) incontinence b) penile size and strength c) loss of orgasmic sensation ( meaning the sensation I experienced prior to surgery – )

90 11/19/2009 4:48

My partner and I were not terribly sexually active prior to my being diagnosed with prostate cancer. Having prostate cancer and being treated for it simply eliminated sexual activity from our lives. I am sad about that, but I don’t know what to do about it. My partner doesn’t want to discuss the matter, I have to take drugs (Lupron, etc.) that pretty well eliminate my sexual abilities, and the doctors I have dealt with have been utterly useless on the subject. It is like they simply don’t care about how the disease and treatments for it affect you mentally. If whatever they do keeps your PSA low, as far as they are concerned they’ve done their part, and how much damage has been done to you/your marriage in the process is of no consequence. On common theme in the support group I attended for a year or so after being diagnosed/first treated was the phenomenon of what we called “The Incredible Shrinking Penis”: –It didn’t matter what treatment people had had, whether surgery or radiation, everyone in the group was as certain as they could be that their penis was 30 to 50% smaller afterwards. I KNOW mine is. But universally doctors say it isn’t true/doesn’t happen/etc. They lie. It does

69 10/23/2009 20:04

After the first year (post-operative) I started to get erections and enhanced them using Viagra. The differences between sex prior to prostatectomy and post were a huge shock ! The surgery had reduced the size of my penis – erections were not si strong – orgasm was “strange” and sometiomes painful ( I could feel nerve pain ) and the lack of the ejaculatory sensation was disappointing. Most dramatic is my loss of libido – I think largely because I remain incontinent the whole issue of sex – desire and comfort – is diminished. We had a great sexual relationship – vigorous, creative, frequent and important to both – and I know that I have subliminated my sex drive due to three main issues: a) incontinence b) penile size and strength c) loss of orgasmic sensation ( meaning the sensation I experienced prior to surgery – )

49 10/21/2009 2:34

I have everal problems that are very frustrating to wife and I besides those captured in the questions above: 1- pyronies disease gave me a curvature that makes masturbation difficult and penetrative sex very very difficult. 2-I experienced severe shrinkage of penis (length and girth) after surgery that makes intercourse difficult. On t     he rare occasions when I am able to penetrate, it isn’t satisfying to my wife.

2 Replies to “Want to make a difference? Prostate cancer online sexuality survey for survivors and partners. Dr. Jo-an Baldwin Peters (PhD)”

  1. We have over 600 respondents to our survey which can be accessed online at www.http://prostaid.org.
    Just tick the big red check mark in the top right hand corner and the survey starts. Please follow the instructions on the dates of birth very carefully as they are in the European format as this is an international study.

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