A prostate cancer blog with a microphone….I don’t know where to begin..same ole same ole…..


since then it's been a book you read in reverse, so you understand less as the pages turn.....pink bullets

And I so loved his movie and that he was singing “ The day they drove old Dixie down.”  Dana Jenning’s family and the emotion that goes with all this prostate cancer stuff. I have been there. But this?  Ted Turner and the trite old “money reference” in conjunction with the treatment of prostate cancer. Then the anecdotal patient that did well not doing ” radical treatment.” What is radical treatment? I had my prostate removed and I am doing quite well on all medical fronts. What am I missing here? A patient can be angry that he is not whole after the treatment of prostate cancer, but to blame the medical community and not the disease? What about the disease? If 50,000 prostatectomies were done and only 10,000 were necessary where does that leave us? Who are the 10,000……we don’t know. Do we throw the baby out with the bathwater ?

Low PSA and low volume on the prostate biopsy that is Gleason’s 6- the patient will do well in most cases.

High PSA, high volume on the prostate biopsy that is Gleason’s 8 will not do as well.

To lump them all together is irresponsible. To tell people you can cure if you do something, or to tell people not to do something is equally misinformed. This the problem with some of these books out there. No book or doctor can promise cure or from the get go that a patient won’t need a biopsy or a particular type of treatment. One can describe  which cancers are aggressive, which treatments are considered aggressive and then allow the patient to make decisions about treatment peculiar to him and his family. In the same way, which options are suitable for the more  favorable prostate cancers. Not all prostate cancers are alike, not all patients are alike. Treatment should be “customized” to the specifics of the disease in the context of the patient.

I am a urologist. I was diagnosed at age 52. I had favorable biopsy parameters. I was mapped for radioactive seeds and had a catheter in my penis and an ultrasound up my rectum in anticipation of that form of therapy during lunch and saw about twenty patients after that. It was a tough and trying time for me and my family.  I took three months to decide what to do. For better or worse, I had my prostate removed. I am at peace with my decision.  I made the right decision for me. My process I feel is the process each should use on that difficult journey to “his” decision. I would not advocate one type of treatment for all cancers.  One size or one treatment or one book……doesn’t fit all.

 

August 30, 2010, 5:00 pm

<!– — Updated: 5:11 pm –>A Rush to Operating Rooms That Alters Men’s Lives

By DANA JENNINGS

Jeanette Ortiz-Burnett/The New York Times

As I scuffed through the stations of the prostate-cancer cross these past two years, I sometimes wondered whether I wasn’t a dupe caught up in a Robin Cook medical thriller.

Sure, the biopsy (so I was told) showed that my prostate was cancerous. And after it was removed, the pathology report revealed that the cancer was unexpectedly aggressive, thrusting me from the relative comforts of Stage 1 to the deep woods of Stage 3.

But at least on the surface, the cancer itself never did any damage. It was the treatments that razed me — the surgery, radiation and hormones producing a catalog of miseries that included impotence, incontinence and hot flashes. And a small voice kept whispering: What if this is all a lie? A dark conspiracy of the global medical-industrial complex?

And now comes “Invasion of the Prostate Snatchers,” by Ralph H. Blum and Dr. Mark Scholz, effectively confirming my whimsical paranoia.

Mr. Blum, a cultural anthropologist and writer, has lived with prostate cancer for 20 years without radical treatment, and Dr. Scholz is an oncologist who has treated the disease exclusively since 1995.

Their book, written tag-team style, is a provocative and frank look at the bewildering world of prostate cancer, from the current state of the multibillion-dollar industry to the range of available treatments.

About 200,000 cases of prostate cancer are diagnosed each year in the United States, and the authors say nearly all of them are overtreated. Most men, they persuasively argue, would be better served having their cancer managed as a chronic condition.

Why? Because most prostate cancers are lackadaisical — the fourth-class mail of their kind. The authors say “active surveillance” is an effective initial treatment for most men.

They add that only about 1 in 7 men with newly diagnosed prostate cancer are at risk for a serious form of the disease. “Out of 50,000 radical prostatectomies performed every year in the United States alone,” Dr. Scholz writes, “more than 40,000 are unnecessary. In other words, the vast majority of men with prostate cancer would have lived just as long without any operation at all. Most did not need to have their sexuality cut out.”

A collage of photos and insights submitted by readers..

Yet radical prostatectomy is still the treatment recommended most often, even though a recent study in The New England Journal of Medicine suggested that it extended the lives of just 1 patient in 48.

And surgery, of course, is most often recommended by surgeons and urologists — who are also surgeons. Mr. Blum writes: “As one seasoned observer of the prostate cancer industry told me, ‘Your prostate is worth what Ted Turner would call serious cash money.’ ” As for patients, their rational thinking has been short-circuited by the word “cancer.” Scared, frantic and vulnerable — relying on a doctor’s insight — they are ripe to being sold on surgery as their best option. Just get it out.

Every urologist I met with after my diagnosis recommended surgery, even though it was believed then that I had a low-risk Stage 1 cancer. The best advice came from my personal urologist, who declined to do my operation because it was beyond him: “Avoid the community hospital guys who do a volume business in prostates.”

I did, but I’m still maimed. In my experience, doctors play down punishing side effects like incontinence, impotence and shrinking of the penis. Those are just words when you hear them, but beyond language when you go through them.

Despite the impression the authors give, though, judging the velocity or voraciousness of a prostate cancer can still be imprecise. I know this firsthand.

After my biopsy, it appeared that I had a Stage 1 cancer, a doddering old nag that the authors would have designated for active surveillance. As it turned out, I had an especially pure Stage 3 cancer, a real top-fuel eliminator in terms of velocity (and hunger).

I’m a wild card, the 1 man in 48 saved by surgery. Without it, my doctors wouldn’t have learned the cancer was so advanced, and wouldn’t have given me the hormones and radiation that helped keep me alive.

So yes, prostate cancer is a dark and mysterious country, and Mr. Blum and Dr. Scholz are good, levelheaded guides through these thickets. And in telling men to slow up and take a deep breath after they learn they have prostate cancer, they provide an invaluable service. I wish I had had this book back in 2008.

But all of this raises one last stark question: Was my life worth the 47 other prostatectomies that probably didn’t have to be performed?

I don’t know. I’m a man, not a statistic.

3 Replies to “A prostate cancer blog with a microphone….I don’t know where to begin..same ole same ole…..”

  1. I have a problem with the tone of the book, and Mr. Jennings’ review. No one recommended surgery to me. The three urologists I spoke with, and the two radiation oncologists I spoke to, all emphasized that this was my decision, and that they couldn’t make it for me. They urged me to speak with others, and they all mentioned the potential side effects from surgery and radiation (except for Peyonie’s disease). They mentioned a number of sources of information, and I checked them all out. Then I made my decision. Like Mr. Jennings, the pathology report showed my cancer more aggressive and more extensive than expected from the biopsy. I am not a victim of the urologists, and I do not believe most urologists are motivated to recommend any particular form of treatment by the thought of how much they will earn.

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  2. Dana Jennings is an exceptionally good writer but he fails to disclose many relevant details such as his young age at time of diagnosis, his family history what his DRE showed, his Gleason score and his PSA. No doubt his excellent Physician took all the relevant factors into consideration prior to treating him.
    Physicians treating prostate cancer have been given such a “bum” rap that the norm has risen and better patient information and treatment are constantly improving. This is a positive outcome that has arisen from Physician bashing but now it is going overboard and it is time to STOP.

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  3. All very well, but don’t let the arguments about “false positives” lull you into forgetting that the PSA test gives a “small number” of false negatives. I was lulled all right, with stable, safely low PSA numbers for years, until I woke up with Stage 4 metastatic disease. Still around but no thanks to the PSA test or my lovable, but passive GP. If the above inexplicably whets your appetite I tell my story on a webpage, http://tjgorton.wordpress.com/pc-as-in-prostate-cancer/

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